April 21, 2014

SO MUCH GOING ON!

But ya know, could be worse, haha.  Just smile and nod right?  But this time of year always seems to be busy, so I'm not surprised.

Tomorrow I do my 4th injection.  And then Wednesday I need to call and make sure they've got the meds taken care of, cause if they don't then I need to call the nurse and reschedule.  Then tomorrow and Wednesday will be the "I FEEL LIKE CRAP" days, lol.  But that's ok.  Then Thursday we will run a few errands (maybe.  Maybe just stay home and play guild wars).  Friday we HAVE to get out and go do something, cause I'm tired of being stuck in the house.  I'm am SOOO ready for this flare to be over.  HOPEFULLY soon.  Guess we will see.

Then Saturday is OKC wars. :)  YAY for getting to see people!  lol.  I love spending time with Ruben and the girls.  Don't get me wrong.  But I am a social person, and I need to be social with more people than just them.  So yeah.  That'll be fun.  Won't be playing in the tourney they are having, but we can play some Warmachine, or Infinity, or SOMETHING else.  I just need to get out and hang out with people again. 

Sunday we will go back to me not having to do a lot.  I went to hang out with Ruben's family for Easter, and while I did love getting to see everyone - especially baby Jason - it kicked my BUTT! I wasn't worth much AT ALL the rest of the day.  And it is annoying.  As much as I HATE doing laundry, I'm kinda ready to get back to routine.  Being able to drive us over there and get the laundry done.  Being able to go to the store when I need to, or get out and about when we need to.  I just hope this goes away in time for summer break (which isn't TOO far away, so it's a long shot)  I wanna be able to do the zoo, or the park, or something like that with the girls and not be trapped inside all summer long.  Guess we will see when it gets here, but I can hope right. :)

And I'm beyond ready for my body to get used to the Avonex so I don't feel like total and complete shit for 3 days out of the week, heh.  I'm sure it will get better, but damn.

New meds are making a difference.  I take a 100mg gabapentin first thing in the morning, and it lets me get up and do things (not great, but it helps).  I have Xanax (which I'm being SUPER careful with.  My damn addictive personality makes those dangerous).  And then I take a 300mg gabapentin at bedtime.  It seems to be helping.  It'd be better if the doc would give me ACTUAL painkillers, but they have so many problems with the new law, and with people using them for addiction, that it makes it SUPER hard for those of us that NEED it, ya know?

Pretty soon I need to get the paperwork together for the tax exemption for the health care stuff.  Stupid Oklahoma not expanding Medicaid makes it  IMPOSSIBLE for us to get insurance.  We make too much for OK Medicaid, and too little to get help from the national marketplace.  YAY for being stuck in the middle - NOT!  Seriously though, I know we can get the exemption, and I'm super happy that the drug company is working with me to get the meds, and the neurologist is working with me to get to see me.  New meds have 4 refills, and I won't go back for 4 months.  HOPEFULLY by then this flare will be over and the Avonex will be working to keep another flare away for a good long time. :)  Do what you gotta do right?

Ok, I think I've rambled enough, so I'm gonna get out of here and try to figure out what's for dinner.  LATER TATER!  LOVE YOU GUYS!

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